I’m still here

I can’t breathe. I should be able to, my allergies aren’t causing wheezing or sneezing. But I can’t breathe.  It comes from the heart. As a professional sick person, I’m aware of the mindset that disease repels.  I’m not so sure.  I think that disease terrifies people.  It scares me and I am a sick person. … Continue reading

Being human?

My elbows. And the tip of my nose. What do those body parts have in common? They are the only parts of me that don’t hurt (right now any way). I have been in one of the hardest flares of my life. Too exhausted to stay awake. Too much pain to fall asleep. Too fatigued … Continue reading

Lesser-known holidays

I love holidays.  Probably the product of my upbringing.  We have 25 plastic containers of Christmas decorations at home.  When finished, it looks like a holiday wonderland.  It has been said we kind of go overboard.  We get a little excited about fall (Halloween and Thanksgiving), Valentine’s day, and St. Patrick’s Day too.  My dad’s … Continue reading