I’m still here

I can’t breathe. I should be able to, my allergies aren’t causing wheezing or sneezing. But I can’t breathe.  It comes from the heart. As a professional sick person, I’m aware of the mindset that disease repels.  I’m not so sure.  I think that disease terrifies people.  It scares me and I am a sick person. … Continue reading →

What did you do last night?

It is a seemingly harmless question, until you put the emphasis I keep hearing on it. It sounds more like, What did you DO last night?!  Everyone is only trying to start a conversation, to flaunt the edges on what appears to be my excessive tiredness. Only two people at my new job know that … Continue reading →

Hoops are for suckers

You know those ridiculous little yellowish bottles with the white caps and labels that medications come in?  You’d think that those bottles were made of gold, with all the hoops that I have had to jump through to obtain one – an empty one at that!  Last August, the office that I worked at had … Continue reading →

…and things are back to normal

  One of my least favorite parts of fibromyalgia is the soap opera that occurs whenever I visit any kind of health specialist.  I can almost hear the dramatic music swelling while I wait for test results that will only tell me what I already know: I’m in perfect health. On paper.  Hell, on paper, … Continue reading →

Hello! From the future

Today, for the first time this year, I felt a tug on my heart and mind.  It was the future, saying hello! Everything has been whirring about me lately, moving much faster than I expected, and I was surprisingly startled at this futuristic greeting. I realized today just how different my life is going to … Continue reading →

How are you?

Life with Oz lately has been tough. Especially on me. To be honest it’s hard. It sucks a lot.. It’s like I’m looking at the character sketch of myself and trying to figure out what I can emphasize and hold on to. It is like Einstein’s riddle. There are a bunch of clues and you … Continue reading →